Many patients endure years of pain and discomfort before finally discovering that their symptoms are caused by a single, often rare condition. This narrative is all too familiar for individuals with scleroderma. Take Dee Burlile’s story, for instance: her suggestion of a potential underlying condition was met with skepticism by her doctor, who remarked, “I’m not going to look for zebras if the zoo isn’t in town.” It took four more years before Dee received a scleroderma diagnosis. Reflecting on her journey, she wished her doctor would have been more willing to "look for zebras"— or consider rarer diagnoses—when common explanations did not fit.
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